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Special Needs Parenting

To the Mom Whose Child Sabotages Mother’s Day

By Sharla Kostelyk

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If you clicked on this article expecting cute stories of burnt toast and other breakfast-in-bed mishaps, this is not that article. If you are parenting a child with Reactive Attachment Disorder or early childhood trauma, this is for you.

For most moms, Mother’s Day is a day to be recognized, to be celebrated, or perhaps just an average day. For moms of kids with Reactive Attachment Disorder, Mother’s Day comes at a price.

My first five years or so of being a mom, Mother’s Day was breakfast in bed and sweet homemade cards. Once we began our journey of fostering and adopting, Mother’s Day changed. There was still the dog-pile of little ones jumping on my bed too early in the morning to wish me a “happy ‘movvers’ day” and gifts of macaroni necklaces or handprint art. But the holiday became significant in other ways as I considered the birth parents of my children and as I came to fully realize what a tremendous privilege it is to be a mom.

After our first three adoptions, Mother’s Day was a day that in my heart and in my words, I shared with other moms as I acknowledged the significance birth moms (though I just refer to them as moms) held for my kids and even for me. Were it not for them, my kids would not have life and I would not have the gift of loving them.

And then came our last adoption of two siblings who had a complicated history and who both suffered from Reactive Attachment Disorder and early childhood trauma…

Mother’s Day was no longer breakfast in bed and sloppy kisses. It was walking on eggshells and dodging the most hurtful words imaginable. It was having gifts broken and plans foiled. It was hours-long rages and buckets of tears. It was spite and venom. It was love rejected. It was dreams dashed. It was spending the day away from my kids rather than with them. It was questioning my abilities and worth as a mom.

If you are that mom whose child sabotages Mother’s Day, this is what I want you to know:

  1. It is not you they are rejecting. You are not the one who caused the trauma or inflicted the hurt. You represent the possibility of more pain if they risk loving fiercely again. It is that pain they are rejecting, not you.
  2. You love them well. If you didn’t love them so well, you wouldn’t be perceived as such a threat. In a way, their rejection is a reflection of just how effective your love is. Good job momma!
  3. You did not cause this. I’m so sorry that you have to bear the brunt of it.
  4. It’s okay for you to take a day to yourself. 364 days of the year, you give all that you have and then more than you have to give to this child. You deserve one day.
  5. I know that in an ideal world, you would want to be spending Mother’s Day with your children, but if you are parenting a child whose past causes them to sabotage this day for you, plan to be away for the day. Taking care of yourself doesn’t make you less of a mom.
  6. Stay off Facebook on Mother’s Day. Trust me on this one. You can thank me later.
  7. You are doing an amazing job. Parenting is never easy but parenting a child with trauma is hard, hard, hard and you are doing it. You need to give yourself more credit. You rock!
  8. Remember that their hurt comes from a place that is very real. This day is likely even harder for them than they are making it on you.
  9. It’s okay to acknowledge the pain that this causes you. You don’t deserve this and frankly, neither does your child.
  10.  You are not alone. There are other moms crying in their bathrooms at the same time you are.

What Mother’s Day looks like now in our house:

For a few years, we tried to continue our usual Mother’s Day traditions. It was just too painful and hard, not just for me but for my kids, both the ones suffering from RAD and for the others. For a few years after that, my husband would take the kids out for the day and I would spend the day alone which was better and not quite as triggering for our kids, but still left me feeling quite sad.

Then, I decided to make Mother’s Day more focused on others. I began making a nice brunch for my mom and my mother-in-law and keeping the focus on them, making it more of a grandmas’ day. This helped my kids somewhat. They were still triggered, but not to the same extent. I have since continued that tradition and added reaching out to a single mom each year and inviting them and their kids to the brunch. I find that by keeping the day focused on others, I don’t fall into the trap of feeling sorry for myself as easily. I do still feel nervous leading up to Mother’s Day and I have to work hard at not comparing mine to others (see #6 on the list), but the sting isn’t as strong as it once was.

P.S. If you want to be able to celebrate a Mother’s Day, make a secret one another day. Ask your spouse or a close friend to create your own special day midweek. Just be sure not to tell your child about it.

Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope for parents.

What I Wish You Knew About being a parent to a child who has RAD (Reactive Attachment Disorder)What I Wish You Knew About Parenting a Child with RAD

Recognizing the Signs of Reactive Attachment DisorderRecognizing the Signs of Reactive Attachment Disorder

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Filed Under: Adoption, Special Needs Parenting

Nutrition for Childhood Trauma

By Sharla Kostelyk

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Obviously, good nutrition is important for all children. For children who have experienced trauma either prenatally (such as prenatal exposure to drugs, alcohol or stress) or in early childhood, good nutrition is a critical component in their brain function and healing.

The importance of nutrition in children who have had early childhood trauma along with practical, specific tipsChronic stress can actually impact the way a person digests and absorbs their food so in children with higher cortisol levels due to early trauma, supplements may be needed.

When a child eats regularly scheduled nutritious snacks and meals, their blood sugar levels remain constant. This allows an optimal opportunity for learning and for regulating moods.

Dehydration causes all kinds of problems including decreased cognitive function, headaches, fatigue, poor concentration, increased anxiety, and mood swings. Getting enough water and reducing or eliminating caffeinated and carbonated drinks impacts everything from sleep to emotional regulation to playtime.

Ways to improve nutrition in children with trauma:

  • set a timer to remind yourself to give your child small healthy snacks
  • have a regular schedule for mealtimes so that they know what to expect
  • give each child a water bottle and keep it filled all day
  • remind them regularly to drink their water
  • model healthy eating by eating breakfast, lunch and supper yourself and drinking enough water

If you suspect that nutrition may be playing a role in your child’s behaviour, keep a food journal for two weeks. Document everything your child eats and what time and record behavioural challenges that correlate within a two hour window. Look for patterns.

If you see patterns that seem to correlate with behaviour issues, try eliminating that food from your child’s diet or try an elimination diet. Foods that are commonly associated with changes in behaviour are gluten, dairy, sugar, colourings, and additives.

Omega-3 fatty acids are especially important for children who have FASD (fetal alcohol spectrum disorder), ADHD or trauma. Studies show they reduce symptoms of anxiety, impulsivity, inattention, and learning difficulties. Omega-3 can be introduced through fish oil capsules, seafood, flaxseed oil capsules or flaxseed, raw almonds, raw walnuts, soybeans, spinach, and chia seeds.

Adopted children and food:

Food can be interlinked with trauma in children who have experienced neglect or were born into poverty and went hungry. Providing a feeling of safety in regards to food can take years. It is important for children, especially those who may not have had consistent access to food in their past to know that their physical needs will now always be met. Telling them that there will always be food for them is not enough. Show them where the food is in the house. Choose some food that they can have unlimited access to. In our house, this is fruit and vegetables, but when our internationally adopted children first came home, we also provided them with a box of snacks such as granola bars and nuts that they could have whenever they wanted. We always kept their water bottles filled so they would know that clean water would never be something they had to go without. Having very set snack times and mealtimes also helps to establish trust in the area of food.

Some children who have experienced neglect or hunger will hoard food or will eat to the point of being sick. Generally speaking, those types of behaviours will lessen once food is consistently provided but for some children, these behaviours can be long lasting. The brain is a powerful thing and sometimes even years after hunger, children will be in fear of being hungry and be hoarding food or overeating. If this is the case for your child, you need to talk to a doctor or mental health professional, particularly one who specializes in adopted children.

Malnutrition is also a consideration in adopted children who have experienced hunger. They will need supplements and a nutrient rich diet. They will also need healthy fats to help with their brain development and function. You may wish to consult with a nutritionist.

Adoption Nutrition is a website specifically for information for adoptive parents on nutrition. It also includes lists of what internationally adopted children may be deficient in depending on their birth country.

Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope for parents.

This is part of a series with other special needs moms. This month’s topic was food or mealtimes. You can click on the links below to read their tips and experiences.

Food Issues: Are They Behavioral, Sensory Related or Medical? | Every Star is Different

How We’re Gradually Introducing New Food Into Our Son’s Restricted Diet | My Home Truths

Nutrition for Childhood Trauma | The Chaos and The Clutter

30 Things SPD Parents Secretly Wish You Knew About Their “Picky Eater” | Lemon Lime Adventures

Mealtime Strategies for Kids with Hyperlexia and/or Autism | And Next Comes L

How to Help a Non Verbal Autistic Child at Make Meal Time Choices| Kori at Home

The 7 Food Battles Not Worth Fighting About With Your Picky Eater with Special Needs | Finding the Golden Gleam

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Filed Under: Adoption, Special Needs Parenting

What I Wish You Knew About Parenting a Child With RAD

What I Wish You Knew About being a parent to a child who has RAD (Reactive Attachment Disorder)

By Sharla Kostelyk

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Parenting children who have RAD (Reactive Attachment Disorder) has been the single most challenging thing of my life. I had read about it, attended seminars about it, talked to other parents who were walking it, but none of that could have prepared me for the reality of it. Because I was not prepared even though I had all the head knowledge, it’s hard to write about this knowing that no matter how carefully I choose my words, they will not be able to fully convey what living this journey is like. I am also carefully structuring my sentences so that they speak in generalities and not about my children in particular.

What I Wish You Knew About being a parent to a child who has RAD (Reactive Attachment Disorder)I hope though that in sharing this, others who are parenting kids who have Reactive Attachment Disorder will maybe garner a bit more compassion and understanding from those around them who read this.

This is what I wish you knew about what it’s like to be parenting a child with RAD:

  1. Children with RAD present very differently outside the home. They are often described as “charming” and “delightful” by others when things in the home are decidedly different. This dichotomy can further isolate parents as they worry that others won’t believe them if they share what the child is like at home.
  2. Children with RAD often have poor boundaries and therefore are socially indiscriminate. What you may see as “friendly” and “cute” may actually be a case of mommy (or daddy) shopping. We would appreciate if you would direct our kids back to us if they try to hug you or sit on your lap. We realize that you are trying to help by picking them up or returning their affection, but you may be further damaging their attachment to us. When in doubt, ask us.
  3. We know in our heads that love will not be enough to fix this, but our hearts often feel differently so we try to pour enough love into our child to replace what is missing.
  4. Parents of kids with RAD carry tremendous guilt. It is a heavy burden to carry the weight of something that was done to my child by someone other than me in a time before I even met them.
  5. These parents second guess everything. I know that all parents second guess, but when you are parenting kids who have RAD, it borders on compulsive and it is draining.
  6. Parents of kids who have RAD sometimes (or often) think they are losing their minds. Kids who have RAD can be expert manipulators, Philadelphia lawyers and extreme triangulators. This can lead to questioning of one’s sanity and second guessing facts that you know to be true. It also puts great strain on marriages or relationships with other caregivers.
  7. Parents of kids who have RAD are proficient detectives in their own homes. They need to be in order to keep from going crazy (see #6 above).
  8. We are tired every minute of every day. Our child’s hypervigilance can cause us to also become hypervigilant as we attempt to avoid any possible trigger for them. Our child’s emotional needs are often greater than the capacity we have as human beings to meet them.
  9. Parents of kids with RAD don’t tell you how bad things are because they don’t trust that you would understand the reasons behind their child’s behaviour and they would rather suffer silently than have you judge them or their child. We don’t tell you the worst because we want to protect our child’s privacy. Whatever we are telling you, imagine it at least ten times worse. Words like “rage” and “aggression” may be codes for “completely out of control for hours” and “physically violent”. We may be sugar coating in an attempt to protect. I would rather have you think that I’m a bad parent than have you think that my child is a monster.
  10. We love our child who has RAD. It hurts our hearts to be constantly rejected by them, but we hold on out of hope that healing is possible. We sometimes see a glimmer of the wonderful child that we know is in there and it makes us fight all the harder to love them through this.

 Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope for parents.

You may also want to read:

The Best Reactive Attachment Disorder Books

Recognizing the Signs of Reactive Attachment DisorderRecognizing the Signs of Reactive Attachment Disorder

Calming the Fight, Flight or Freeze Response in Your Child

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Filed Under: Adoption, Special Needs Parenting

Surviving the Holidays With a Child With Anxiety

Getting through the holidays with a child with anxiety

By Sharla Kostelyk

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Christmas used to be my favourite time of year. I embraced all of it, the decorating, the crafts, the baking, the get togethers, the festivities, even the shopping. In the past five years of so, Christmas has become more stressful. Several of our kids struggle with the holidays for various reasons. Some of our kids can’t help but to sabotage big days (you can read a bit more about why that is in this article about parenting kids who sabotage the holidays) while others find it challenging due to their sensory issues or anxiety.

Christmas is usually a time of excitement and fun for everyone, especially children, but for kids who struggle with anxiety, it can be a stressful time. Here are some suggestions on how to make holidays the best they can be.

The holidays can be a huge challenge for kids who struggle with anxiety. These tips can help.Image Copyright: bialasiewicz / 123RF Stock Photo

Talk to them about it.

Being up front with your kids about the possibility that their anxieties might be heightened during the holidays just makes good sense. One thing that can be very helpful to explain to children is how in our bodies, excitement and nervousness can feel the same. When we are excited, our stomachs can get butterflies, our heart rate can speed up, we can feel jittery and these are the same things our bodies feel when we are nervous. Teach them to take a moment when they recognize those signs and ask themselves “Am I excited or am I nervous?”. Doing this easy exercise can make a big difference. You may also want to tell them that it is normal to feel both excited and nervous at the same time.

Open a discussion with them about how they are feeling about the holidays. What worries or uncertainties do they have? What situations are most difficult for them? Is there anything that they are especially dreading? What parts of the holidays are they looking forward to? 

Once you establish how they are feeling about the upcoming holiday preparations and festivities, remind them of their coping strategies. Encourage them and let them know that you believe in their abilities to handle this, but reassure them that you will be there to help them through.

Prepare them.

Children with anxiety often like being given as much notice as possible about what to expect. There are tools you can use such as charts or calendars to show them when the holiday events will occur. This should also be something you talk about with them ahead of time.

It is also helpful to explain in as much detail as you can what to expect at each event. How many people will be there? Will there be a gift exchange? (those numbered gift exchanges where people can steal gifts from others can be a nightmare for our kids with anxiety) Will it be a sit down meal or a less formal one where you make a plate and go sit down wherever? If so, where will your child sit? Will you help him get his food?

Will there be a Santa there? Decorations or lights that bother his sensory issues? Will there be games played? Will he have the option to sit out of the games or activities if they prove to be too stressful for him? How long will you stay?

It is also very helpful for some kids to know that there is a quiet place they can go if it all gets to be too much for them. Discuss with them where this might be. If it is at the home of a relative or close friends, perhaps there is a bedroom that he could go to for some quiet and to compose himself if need be. If it is at the home of someone less familiar or at a venue, perhaps the bathroom or your vehicle (with supervision depending on age) would be more appropriate.

Create a Christmas Calm Down Kit.

Make a calm down kit for or with your child. This can help them practise the calm down strategies that work for them. It will also ensure that they have the tools they need. You can see what we include in our Christmas theme Calm Down Kit. Create your own using the free printable relaxation prompts. 

Role play.

The more prepared a child feels for a situation, the less anxiety they will feel. We role play all types of situations here. You can role play how to greet people at the gatherings, how to ask where the bathroom is, interactions with other kids, and anything more specific to the situations they will be in.

One game we like to play before the holidays every year is one that teaches our kids how to graciously receive and thank people for gifts. I place pictures I’ve cut out of magazines in envelopes. I choose some things they would want such as toys and books and some like underwear and socks and others like kitchen gadgets and practical things they wouldn’t want at all (pink doll for a boy or nose hair trimmer for a girl just to add some humour!). We then sit on the floor in a circle and the kids “open” their gifts. As I hand them the envelope, I tell them who it is from and they then say what they would say to thank that person. I teach them that the reply has to be honest and positive and has to include a thank you. Teaching my son with Aspergers how to say something honest about it wasn’t difficult, but honest and still positive took years of practise for him!

An example would be a boy who “opens” a picture of a pink doll from Grandma. He would then say “thank you Grandma. I will be able to use this to play with my sister.” Another would be a child who “opens” the nose hair trimmers…”thank you Uncle Matt. I will share these with my dad!!!”. We’ve had a lot of fun with this role playing game over the years. On Christmas, some of the practise will fly out the window with the excitement and chaos, but some of it will stick.

Say no.

The holidays is a time where the calendar can be overwhelming even to those without anxiety. Invitations for tobogganing parties, carolling, work functions, cookie exchanges, year-end gatherings, family outings, concerts, church events, parties with friends, and more can create quite a busy month. Carefully consider the invitations and then say “no” to some of them. You may even have to say “no” to most of them.

One of our invitations this year was to an adoption agency Christmas party where there was going to be a Santa and we would have had to bring wrapped gifts for each of our kids. Santa would have been something that caused anxiety for one of my kids, comparing their gifts to the gifts of others would have been a major trigger for another, and finding time to shop for and wrap at least five extra gifts (as well as paying for them) would have caused me stress, so that was an easy “no” for me.

Consider what your kids can handle, what types of things they find stressful and use those factors to make decisions about your holiday schedule. There will of course be some events that may not be as optional, but cutting out those that are can make those that are obligations less stressful too.

Getting through the holidays with a child with anxietyImage Copyright: katarinagondova / 123RF Stock Photo

Maintain routine.

It is more important during the holidays than ever to keep the routines intact. Routines are critical for a child with anxiety to feel some sense of control and peace. There will be nights when you are out and can’t keep to the regular bedtime, but when you are home, stick to the routine. Keep bedtimes the same. Keep mealtimes the same. If there is a certain schedule you normally keep, stay with that during the holidays.

For kids who are used to going to school, not having school to go to can throw a wrench in the routine for them. You can lessen the effects of this by having them wake up at the regular time and go through the morning routine of eating breakfast, getting dressed, brushing teeth, making beds and then choosing an activity that is low stress for your child. Perhaps that is schoolwork or something artistic or perhaps it’s playing outside. Since we homeschool, when I see that the lack of routine over the holidays is throwing my kids off, I will sometimes choose to toss a couple of school days into the holiday week just to get them back on track. It works really well.

Give them choices.

There are of course things that are non-negotiable and expectations that you will still have of your child over the Christmas season, but give them control over a few things. Allow them to choose things that they will see as important such as whether to open gifts before breakfast or after breakfast on Christmas morning. Also give them less important decisions such as whether to wear the red shirt or black shirt to the church service or where to hang their stocking.

Observe them.

You know your child. Watch them for signs that they are becoming too anxious. Listen to the signals they are sending you and earn their trust by acting on those. If you see that they are not able to cope at all in a certain situation, position yourself close to them and remind them of some coping strategies. If you see they are continuing to escalate, it may be time to head home early or take them outside for a walk to give them a break.

Focus on Health.

Christmas chocolates, baking and candy are not part of the Healthy Eating Guide! Be sure your child is getting proper nutrition even through the holidays. Even more critical than that, be sure they are well hydrated. Drinking water helps with anxiety and improves brain function at the best of times, so it is even more important during stressful times. Sleep is another factor to really pay attention to. All of these things contribute to easing anxiety and lessening the chance of meltdowns.

Bring comfort with you.

If your child has a special blanket or stuffed animal that they take comfort in, bring it with you to holiday events. You can also bring sensory balls that they can squeeze when feeling anxious or other items that help them calm down. We have made an anti-anxiety kit for our daughter and many of the items from that can be brought with us anywhere.

What tips do you have for making the holidays less stressful for your kids?

If you feel that your child is trying to sabotage the holiday season, read this.

I’ve really enjoyed participating in a series with other special needs moms about surviving the holidays. Be sure to read their tips and experiences as well.

Surviving the Holidays with Special Needs | Natural Beach Living

Free Christmas Visual Schedule for Kids | Every Star is Different

Navigating Trauma and PTSD Over The Holidays | STEAM Powered Family

Holiday Myths & Autism | My Home Truths

Visual Christmas Schedule for Special Needs Kids | Life Over C’s

Surviving the Holidays with a Child with Anxiety | The Chaos and The Clutter

Questions Special Needs Parents Face During the Holidays | This Outnumbered Mama

26 Holiday Survival Tips for Autism Families | And Next Comes L

The Year That I Made Santa Claus Cry | Kori at Home

Conquering the Holidays: They Don’t Need to be Perfect | 3 Dinosaurs

Why I Canceled Christmas: What You Need to Know about Surviving Holidays | Carrots Are Orange

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Filed Under: Christmas, Special Needs Parenting

Sleep Solutions for Children with Sensory Needs

weighted blanket for sleep

By Sharla Kostelyk

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Any parent who has children with Sensory Processing Disorder knows that sleep can be a challenging endeavour. And when you’re a special needs mom, you need the break that sleep provides!

It’s been interesting over the years to see how our kids’ sensory issues affected their sleep in different ways. We have been able to come up with solutions for most of the sleep issues in our home.

Sleep Solutions for Kids with Sensory Processing DisorderIf your child is not capable of expressing what their sleep issues are, play detective. Try lying in their bed in the dark and using your senses to troubleshoot what issues there may be. Is there any type of noise that may be bothering them? Are the sheets scratchy? Are the walls painted a bright colour or is there too much clutter in the room? How is the temperature in the room? Is there a smell?

Children with SPD are extra sensitive to these types of things so putting yourself in their shoes may help you pinpoint some of the problems and begin to find solutions.

Auditory

One of our sons’ sleep was affected because of his extreme auditory sensitivity, which makes it difficult for him to fall asleep if there is any noise (such as his parents watching TV!) in the house. We found that the simplest solution was for him to use a pair of noise cancelling headphones. He is now able to fall asleep much more quickly. I don’t understand how he sleeps with them on and is still comfortable, but he likes them!

One of our other kids isn’t quite as sensitive but does need to have white noise to sleep. We have tried different things over the years such as fans but have found that this sound machine is what works best. It is soothing as well as providing white noise and makes sleeping much easier.

Proprioception (Deep Pressure)

One of our daughters used to have a hard time settling her body down at bedtime. We found that sleeping with a weighted blanket changed that for her. She is able to settle herself more easily now. Two of our kids have weighted blankets and like them while our other sensory kiddos hate them. The place that I purchased my weighted blankets from allowed us to try them first to see if they worked for our kids before committing to them.

weighted blanket for sleepAnother option for weighted blankets is to make your own. You can find tutorials on how to make your own weighted blankets which will cut the cost significantly.

You can also try stretchy sheets which will provide a similar effect to a weighted blanket. You can purchase them or make your own.

Deep pressure hugs or massages before bedtime can also help with proprioception input.

Visual

Some children need it to be completely dark in order to fall asleep while others need to have a nightlight. It’s a good idea to use a dimmable night light because that way, they can adjust to the amount of light they are comfortable with.

Important Tips:

Be sure to offer a variety of sensory activities throughout the day. Meeting your child’s sensory needs during the day will positively impact your child’s ability to fall asleep at night.

Consider making changes to your child’s sleep environment. Check out this article on Sensory Beds for Kids.

Track patterns and see if you are able to pinpoint things that may be impacting your child’s sleep. Seeing their sleep patterns on a calendar can help you find where their insomnia may be tied to anxiety over school or peers. Seeing their sleep tracked in relation to food or behaviour or sensory triggers can also help you see the patterns that are emerging. You can find tracking for all of these in the More Calm in the Chaos printable planner for moms of children with special needs.

Limit screen time during the day and cut it off completely in the hour or two before bedtime. This will improve their body’s ability to fall asleep.

Have a consistent bedtime routine and bedtime. This structure and predictability around bedtime is especially important for kids with sensory processing disorder.

This sleep smoothie contains some natural sleep help and most kids will happily drink it.

Nutrition is an important piece of the sleep puzzle. Ensure that your child has a well balanced diet, limited sugar and no caffeine.

This relaxation breathing song is an effective way to help kids learn breathing techniques that will help them feel calm. If you play it or sing it and lower the volume slowly, your child may even fall asleep during the song.

Some parents swear by putting lavender oil or another calming essential oil in a diffuser. You can also use lavender oil and epsom salts in a warm bath before bedtime.

More Calm in the Chaos Printable PlannerMore Calm in the Chaos Printable PlannerEssential Oil Home DiffuserEssential Oil Home DiffuserNoise Reducing Headphones for KidsNoise Reducing Headphones for KidsSound Therapy Machine for white noiseSound Therapy Machine for white noise

If you’re looking for more practical strategies that work for your child’s everyday sensory needs for things like picky eating, refusal to wear certain clothing, difficulty self-regulating, meltdowns, and challenging behaviours, you will want to read Sensory Processing Explained. 

Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope to parents.

One last note:

If you have tried everything else and your child is still not able to fall asleep and this problem persists for months, talk to your child’s doctor about other options. They may suggest that it is time to try Melatonin or prescription sleep medications. Choosing to medicate your child is a difficult decision for any parent and not to be taken lightly, but sleep is an important part of your child’s health and all options need to be considered if nothing else is working.

Here are some other articles you may find helpful on the topic of sleep:

Sleep Solutions for Special Needs Parents | My Home Truths

The Sleep-Deprived Mom’s Guide to Survival| Life Over C’s

Sleep Strategies for Kids with Autism or Sensory Needs | And Next Comes L

Seasons of Sleep for Special Needs Parents | 3 Dinosaurs

6 Steps to a Calm Bedtime Routine for Your Highly Sensitive Child  | Carrots Are Orange

You may also be interested in reading:

Sensory Beds for Kids

Tight Fitting Clothing: a sensory mystery unravelled (plus…what in the world is proprioception?!)Tight Fitting Clothing: A Sensory Mystery Unravelled

Money Saving Sensory SolutionsMoney Saving Sensory Solutions

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12 Things That Special Needs Mom Needs from You

12 Ways to Support a Special Needs Mom

By Sharla Kostelyk

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I am that special needs mom. It’s not something I aspired to or wished for, but it is what I am all the same. I was the friend that gave. I dropped off the casseroles, offered to babysit, organized the fundraisers, gave a shoulder or listening ear, hosted the get-togethers. Now, I’m the friend that needs.

I was more comfortable helping that I am accepting help. It hurts to feel vulnerable. It’s lonely being the mom who is always just a bit on the outside of the discussions that other moms have. And yet, I am here. I am that special needs mom.

12 Things a Special Needs Mom Needs from youI now need the village. I don’t know what I would do without my support network, those who have stood by me during the hardest years of my life. They have listened even when they haven’t understood. They have cried with me, prayed for me, and made sure that I still have the chance to laugh.

Some of them are special needs moms themselves, part of this sorority whose initiation we didn’t mean to take. Some of them are women who’ve never walked this road themselves but still chose to willingly come alongside and help carry some of the weight with me.

What That Special Needs Mom Needs From You:

Just be there.  When things get hard, people leave. She is lonely. She has already had people slowly back out of her life now that she is walking this road. Don’t be one of them.

Encourage without advice or judgment. Tell her that she’s doing a good job. Remind her that her instincts as a mom can be trusted. Support her decisions even if you don’t understand them.

Don’t ask, “have you tried xyz?” The message that can send is that there is more this mom could be doing. Believe me, she is exhausted enough already. She has tried so much already, only to be disappointed. The last thing she needs is another serving of guilt. She’s got enough of that to go around as it is.

Include her. When my special needs kids were younger and still super cute, I still got invited to the playdates and my kids got invited to the birthday parties. But as the kids got older and the differences became more apparent, the invitations grew less and less frequent.

Sometimes I’d even hear about a group of my friends (ones that I had introduced to each other) getting together without me. I still remember crying when I heard about a birthday party taking place for my friend’s little girl and my daughter, who considered that girl her best friend, hadn’t been invited.

Include that special needs mom. It might make your gathering less predictable or more stressful to have her kids there, but it’s only a few hours of stress for you. For her, it’s a few hours of feeling like she and her kids are accepted. It’s everything to her and it’s worth some measure of your discomfort.

Include her in your conversations too. It is common that when a friend becomes a special needs mom, you stop telling her your stories or stop complaining to her about things your kids do or hard things in your life because you assume that your small trials are so trivial compared to her big ones. Or maybe you think it will make her feel jealous or angry.

While I can’t speak for all special needs moms, speaking for myself, I want to be included. I haven’t forgotten what it was like to have toddlers. I haven’t forgotten how hard just regular parenting can be. Yes, I have a lot on my plate but I still want to share my friends’ burdens, to be given the chance to be there for them. Don’t protect me. Don’t think that because my problems are big, I can’t understand yours. Burden me.

Extend grace. This is a bit of a tricky one because I just finished saying that you should still treat your special needs mom friends normally and now I’m saying that you need to make exceptions for them. You do. You need to both include them and extend them grace.

They will be late. They may cancel on you often. They can’t be as dependable as they want to be.

Their life is often determined day by day or minute by minute and a medical emergency or being up all night the night before or an epic meltdown ten minutes before they were trying to get out the door mean that they can’t control things like being on time.

I used to be the one bringing the snacks shaped like ladybugs with the perfectly packed diaper bag and the kids in the coordinating outfits with their hair done beautifully (true story). Now, I’m the one arriving with a bag of tortilla chips I picked up at the convenience store on the way, asking if I can borrow a comb to fix up one of the kids’ hair, twenty minutes late, and even my own clothes don’t coordinate. 

Don’t give pat answers. Don’t say, “Everything happens for a reason.” or “God doesn’t give you more than you can handle”. I was so relieved when I discovered that it is a myth that God doesn’t give us more than we can handle because before that, I’d been feeling a bit angry about what God felt I was capable of. When we found out that our daughter had progressive hearing loss on top of all of her other special needs, hearing pat answers made me want to scream.

Pray for her. As I type this, our family is walking a particularly hard road with one of our special needs kiddos, harder than I ever imagined possible. There is a group of women who have offered to sign up for days to pray for us. Sometimes on their day, they send me a scripture verse or song to encourage me and remind me that they are lifting us up in prayer. It makes me feel like we are not alone.

I had a friend last week who stopped by with a Slurpee and a hug and then stood in my driveway and cried with me before wrapping her arms around me and praying out loud right there on the gravel.

Champion her. This is similar to encourage without advice or judgement, but this is specific to those times when she is low or when others are judging her or gossiping about her. When she is low either due to her circumstances or just the weight of everything, she needs you to build her up. Help her to be stronger. Remind her how strong she is.

I recently had a friend tell me that she thought of what I do as being similar to an athlete in the Olympics, that it took the same type of strength and determination as elite athletes. To have someone tell me they admired those qualities in me and to have someone see what I do and acknowledge it gave me what I needed to push through an extra hard week.

You don’t know when your words could be the difference for someone. When you see that she is down, send her a card or a text or pick up the phone. She needs you to build her up so that she has more to give to her child. And if you ever hear anyone judging that special needs mom behind her back, kindly remind the one speaking that she has not walked in that mom’s shoes and that you think that mom is amazing.

12 Ways to Support a Special Needs MomGet to know her child. Take the time to get to know her kids as individuals and celebrate their small successes. Talk more about their personalities than their limitations.

Help. Don’t ask, “what can I do?”. See a need and meet it. Say “I love doing laundry. Would Wednesday or Thursday be better for me to come over and do some laundry for you?”

It is hard to accept help. It’s hard for that special needs mom to admit that she needs help. Sometimes when someone asks me how they can help, I’m too overwhelmed to even know what to ask for. That’s why if someone tells me something specific they would like to do, I am better able to accept it.

Create fun. Bring over a comedy. Tell her funny stories. Text her jokes. Life as a special needs mom has too much seriousness. I miss laughing until my sides hurt.

It’s during those rare moments when I’m having fun that I feel like a normal human again. I love it when a friend plans an outing or brings over a board game to play in the evening after the kids go to bed. It’s in those moments when I can forget about all the heaviness for just a short time. It feels so good to be able to stop thinking about the hard things for even a short time.

Support her marriage. Divorce rates are higher among families of special needs children. It’s a statistic that likely scares that mom. Offer to have her kids over during supper while she and her husband go out to eat. Encourage their relationship. Have them over as a couple.

It’s ok to not say anything. Don’t bring up the worst case scenario or tell the story of your cousin’s friend’s neighbour whose child had the same type of special need and something terrible happened.

If you feel the need to say something, “I don’t know what to say” or “I’m sorry” or “I’m here” will suffice.

Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope to parents. 

I am pleased to have joined a fabulous group of bloggers to bring you this series on Parenting Special Needs Children. Be sure to read their stories this month on support.

Supporting Yourself and Your Child with Special Needs | Natural Beach Living

Am I Going Crazy? | Every Star is Different

Tips For Supporting A Child With Trauma History | STEAM Powered Family

Special needs parents: we all need support (even you) | My Home Truths

12 Things That Special Needs Mom Needs from You | The Chaos and The Clutter

Simple Ways You Can Support Special Needs Parents | B-Inspired Mama

Classroom Supports & Accommodations for Kids with Hyperlexia | And Next Comes L

A Letter to Parents with a Child on the Spectrum | Carrots Are Orange

Supporting a Family with High Medical Needs  | Grace and Green Pastures

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Filed Under: Special Needs Parenting

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