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Special Needs Parenting

Helping a Child Through Trauma

adult hand holding child's hand. Text reads "Helping a Child Through Trauma"

By Sharla Kostelyk

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Nothing could have prepared me for what it’s been like to parent children with attachment and trauma disorders. Nothing. I took courses, attended seminars, read books, and listened to others who had walked this road before me and yet, I had no idea how hard it would be. No one could have convinced me the extent of the pain it would be to love a child who, through no fault of their own, rejects me daily, even hourly some days.

No one could have prepared my heart for what it would be like to watch my child suffer from debilitating anxiety, flashbacks, regression, nightmares, dissociation, and behavioural issues.

Helping a Child Through TraumaImage Copyright: / 123RF Stock Photo

Where can childhood trauma come from?

There are many factors that go into answering this question because each child is unique and has a different level of resiliency. (If you want to read something that will make your brain hurt, try reading up on the research about resiliency!) This means that for one child, a parent’s divorce can lead to long-lasting trauma symptoms while other children, even ones in the same family emerge from the same situation without any signs of lasting issues.

Common causes for childhood trauma include:

  • long hospitalizations or painful medical procedures
  • prenatal stress
  • prenatal exposure to drugs or alcohol
  • separation from a parent due to adoption, death or divorce
  • abandonment
  • abuse
  • witnessing abuse
  • witnessing a trauma or a death
  • being involved in an event such as a major car accident or natural disaster

For hope and practical help, sign up for our special series, Little Heart, Big Worries.

As a mom raising several traumatized children, here are some discoveries that have been essential in helping them and the rest of our family to navigate this journey:

It’s not about you.

It can be so hard not to take things personally, particularly when you are the target of the child’s anger. They may tell you multiple times a day how much they hate you and hurl insults directed at you almost from morning until night, but it is not you that they hate.

It is their situation, their feelings, their shame, their anger, their past, their trauma. I know how hard it is not to take it personally. Some days, my humanness gets the better of me and I take it to heart. When that happens, I either fall apart emotionally or I respond to the comments thrown at me (even though I know that it just escalates things). Neither of these responses helps the situation and I do know that, but it is impossible not to be affected by it.

My advice on this is to have people around you in your support system who can remind you that this is not about you and who can give you breaks.

Take care of you.

You need time to recharge. Parenting a child with trauma issues is an exhausting 24/7 job. I recently read something that said that parenting a child with trauma was the equivalent of parenting 3 children. I don’t even want to do the math on what that means for me!

I’m sure you know about the analogy of the oxygen mask on an airplane and how that applies to parenting, but with parenting children with any type of special needs, that analogy holds even more true. You simply cannot care for your child’s needs if you are not meeting your own.

I’ve written a whole (short) book about the importance of self-care and what that actually looks like, but I am really bad at taking my own advice. I seem to go in spurts of getting better and then slipping back into old patterns again. I’m working on it!

How old are they right now?

One of the programs we did with both our son and our daughter taught us this trick and it has served us so well. When kids have an early childhood trauma, they can become stuck at that age or revert to that age when under stress or when they encounter a trigger.

With a neuro-typical child, if they were acting like a two year old when they were actually seven, you would likely expect them to act their age. That kind of thinking can be harmful when parenting traumatized children because they truly are two years old in that moment and if you respond to them as if they are seven, you will not be meeting their needs.

I have trained myself to ask myself often during the day, “how old is he/she right now?”. Once I determine the answer, it is much easier to react because I think about how I would react to an infant or toddler or four-year-old in that circumstance and act accordingly.

Just as an added note: it is not helpful to say things like, “you are acting like a two year old”, so resist the urge!

Where are they right now?

This is another technique that I learned from that same trauma/attachment program. You train yourself that when your child is acting out to ask yourself “where are they in their story right now?”

Your child may be in your kitchen having a tantrum about what seems to be their big sister not including them, but they may actually be back re-living the day they were brought to the orphanage and that feeling of rejection that this has brought back up for them. Or your child may be unresponsive when you are talking to them because a noise they just heard put them right back into a room where years ago they were abused.

This is another skill that actually gets easier the more you practice it. It isn’t intuitive at first but it starts to make sense after awhile. You will become better at reading your child’s responses and responding to them with compassion. They will start to feel understood.

This journey of parenting a child who has had childhood trauma is most certainly a journey of a thousand (or perhaps a million) baby steps. Understanding where they are in their story in the moment and how old they are in that same moment are two keys that help you start taking those steps.

Get to know their triggers.

For a child who has experienced some kind of trauma or abuse, triggers are everywhere. It may be a sound, a smell, something they see or touch, or even a taste. This trigger can send them right back into their trauma. I suggest that you keep a journal where you jot down anything you notice before your child dissociates or tantrums. This will help you discover with them what set them off and help both of you better prepare in the future.

It is impossible to avoid all triggers as there can always be something unexpected waiting around the next corner, but being aware of what those triggers are is half the battle.

If you know that a particular trigger is coming up, you can talk about it with your child and help them to prepare. Talk about strategies that they can use to get themselves through and stay calm and in the present. Often, just talking about it and preparing ahead of time is enough to get them through.

Create an Anti-Anxiety Kit for Your Child including free printable relaxation promptsAnother type of trigger is what people often refer to as traumaversaries. There are times of the year that can be a trigger for your child depending on what time of the year it was when their trauma occurred. This can be something dependent on the season, month or holiday.

Lots of parents remark how incredible it is that every year when a certain month comes around, their child is triggered but they were too young at the time of their trauma to even know what month it is. The body is an incredible thing and it stores that information even though the child may not be consciously aware of it. Sometimes, just bringing it to your child’s attention can be enough to lessen the effects.

Saying something like, “did you know that it was around this time of the year that you were hospitalized with that infection and almost died? That must have been such a scary time for you. Would you like to talk about that?” can really de-escalate the behaviours the child is demonstrating at that time of the year.

Teaching emotions.

It’s important for all kids to learn the vocabulary they need to express their emotions, but it is even more important for kids with trauma backgrounds. I do a lot of teaching with my kids around this topic and try to keep it light and fun so that their brains are more able to absorb the information. I use a variety of different resources to accomplish this.

Cognitive function.

Trauma affects the brain’s ability to learn. It changes brain function and actually forges tracks in the brain based on trauma responses. Traumatized children are often forced to function in the lower part of their brain for survival.

Higher level brain function is necessary for much of what we expect children to do at home and at school and someday at work, so helping them access that top level of their brains is important. When they are triggered and experiencing a trauma response, it is all but impossible for them to access that part of their brains which is why it is so important to teach them skills for calming themselves.

This is a huge topic that deserves an article of its own, so this is just a very quick run-down but here are a few things you can do to help your child with this:

  • apply strategies to reduce cognitive load
  • exercise
  • water (hydration is more important for trauma kids)
  • calm-down techniques
  • meet their sensory needs
  • crossing midline exercises to get both sides of the brain communicating with each other
  • adequate sleep

Get Professional Help.

You cannot do this alone. You will likely need to enlist the help of a team of professionals. This team may include an occupational therapist, teachers and aids in school, community aid worker, counsellor, and psychologist and/or psychiatrist.

Admitting that you need help is not admitting failure. It is being willing to do what is best for your child. You cannot be an expert in everything but as a loving parent, you can seek out those who are experts in the areas your child most needs help.

Sometimes, you may even need to consider medication. Making the choice to medicate your child is not an easy one but this may be an important piece in their road towards healing for some families.

Research and implement TBRI.

We went down a lot of different roads in trying to find help for our kids affected by early trauma. Some roads led to glimmers of hope or a bit of success, but none had lasting effects until we found TBRI (Trust Based Relational Intervention). TBRI is based on the theory that what is harmed in relationships can only be healed in relationships. It is heavily researched both in terms of brain science and in practical implementation.

My husband and I flew to Minnesota to attend a weekend conference called Empowered to Connect where we heard speakers including Dr. Karyn Purvis. We bought the TBRI DVDs and spent many hours in our living room doing what we called “going to University” together. We read the book The Connected Child written by Karyn Purvis and attended another conference in Alberta, Canada where there were speakers versed in TBRI who spoke as well as Deborah Gray, author of Attaching in Adoption.

We began to implement the TBRI principles in our home and saw immediate results with some of our kids. We were so encouraged by what we saw that we decided to plan our own week-long therapy camp at home for five of our kids based on TBRI. The difference in our home and in our kids (and in our parenting) after just five days was remarkable. It has given us new hope that there really is a chance for lasting healing for our kids.

To learn more about TBRI, visit TCU and Empowered to Connect and watch these very short videos that answer common questions adoptive parents ask. (Note: TBRI was largely designed for foster or adoptive families but is effective with any child who has experienced trauma.)

Measure success in small increments.

The war is won in tiny, almost imperceptible battles that happen many times a day. It is exhausting. It can feel like you are not getting anywhere. It can be hard to see progress.

Be sure to look far back once in awhile to see how far you have really come. Sometimes, it can be a case of one step forward, two steps back, but celebrate the small victories when they come. You will be more encouraged and have the stamina to continue this long journey if you are sure to focus on the successes rather than the setbacks.

Community.

It is so important when you are parenting kids who have been through early childhood trauma to find support with other parents who have been there are truly “get it”. Find other families who can truly understand and offer support and connection in the way no one else can.

Remember this:

“They’re not giving you a hard time. They’re having a hard time.”

Recommended reading:

Books by Bruce Perry

Books by Daniel A. Hughes

The Connected Child by Karyn Purvis

Parenting the Hurt Child by Gregory Keck

Books by Dr. Dan Siegel

Hold Onto Your Kids by Gordon Neufeld

Healing Parents: Helping Wounded Children Learn to Trust and Love by Michael Orlans (I haven’t personally read this one so can’t vouch for it, but came across it and thought it might be good)

Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope for parents.

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Filed Under: Adoption, Special Needs Parenting

Waiting Rooms: a Parent’s Survival Guide

By Sharla Kostelyk

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Over the years, I have put in my time in waiting rooms. From the usual doctor’s and dentist’s offices that most parents sit in to all the specialist appointments that having five kids with special needs will bring, I have sat in waiting rooms for more combined hours than I can even count. Be sure to read my top ten tips for juggling all those appointments and saving time.

Waiting Rooms: a Parent's Survival Guide

Through all those hours, I have learned a few things about ways to pass the time and make the most of the waiting.

Come prepared.

Many factors determine how long your wait will be and the majority of those are out of your control so it is best to over-prepare rather than be caught needing something you don’t have. An example would be an appointment that you expect to be over well before snack time or lunch time or nap time that runs late. Bring anything you might need: blankets, water, snacks, activities, phone chargers, pens and paper, and any medication for the day just in case.

I’ve even had what I thought would just be a simple appointment turn into us being sent to the hospital and staying there for almost a week, so it really is best to be prepared.

Ideas of what to bring:

  • resealable bags (for emergencies like a child throwing up)
  • kleenex
  • wipes
  • medication (both prescription and things like allergy medicine and pain relievers)
  • comfort items such as a special stuffy or blanket
  • phone charger
  • snacks
  • water bottles
  • soother (pacifier)
  • change of clothes for your child (or even for you)

Busy bags and activities.

I bring a variety of busy bags and activities with me. I also keep a small Etch-a-Sketch in my purse at all times.

Oftentimes, a waiting room will be equipped with toys and books, especially if it is a practice that specializes in children, but I’m a bit of a germaphobe, particularly when it comes to things in a doctor’s office. I would rather my kids read a book from home or play with toys we brought with us than use what sick kids have been coughing all over.

Surviving the Waiting Room

Ideas of what to bring:

  • busy bags (click those words to see our busy bags you can easily make yourself)
  • pens, paper
  • etch-a-sketch or magnadoodle
  • magic ink books
  • coloring books and crayons or markers
  • maze books
  • crosswords
  • clipboards with sheets you have printed off
  • homework/schoolwork
  • playdough
  • books
  • flash cards
  • string to play cat’s cradle
  • Chinese skipping rope

Don’t forget the activities that don’t require any tools like playing I-Spy, Round and Round the Garden, Head and Shoulders, or even doing the Hokey-Pokey!

Sensory needs.

Most of my kids have sensory processing disorder, so I keep fidgets and sensory balls (click here to find out how to make them yourself for pennies each) in my purse. I also keep an arsenal of ideas for meeting their sensory needs in my head and even in a crowded waiting room, I pull them out.

It is so much easier to be on top of their sensory needs than to have them turn into behaviour issues. Nothing makes a waiting room more uncomfortable than when one of your kids is having a tantrum! Read how to avoid sensory meltdowns here.

Notebook and pen.

This one is actually for you, not for your kids. I have found that sometimes particularly when it is at an appointment where one of my kids is receiving a new diagnosis, my brain does not process the information well. I sit there and nod but nothing is actually being remembered. I have learnt over the years that it is crucial that I bring a notebook and write things down at important appointments.

Be productive.

A waiting room doesn’t have to be a place to waste time. You can bring cookbooks and plan out your meal plans and grocery list. You can bring your laptop and get caught up on some work. You can go through emails on your phone. You can even sort pictures.

You can have your child bring their schoolwork. Waiting rooms are a great place for you to work with them on skills such as reading, spelling and multiplication tables.

Waiting areas are also a good place to work on your relationship with your child. If you are there with just one of your kids, take advantage of the time you have alone together. Get to know them a bit more and catch up on what is happening in their life and how they are feeling.

Other potentially helpful information if you spend too much time in waiting rooms:

The More Calm in the Chaos Printable Planner for Moms includes forms for all kinds of things pertaining to appointments. It will make life easier, especially if you are parenting a child with special needs.

The Busy Mom's Guide to Juggling Multiple AppointmentsTop Ten Tips for Juggling Multiple Appointments

Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope for parents.

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Filed Under: Parenting in the Chaos, Sensory, Special Needs Parenting

When Your Child Receives A New Diagnosis

By Sharla Kostelyk

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Alphabet soup…it’s the term some people use to describe a situation where there are multiple diagnoses and their acronyms can begin to sound a bit like a strange rendition of the alphabet. It is not uncommon for a person to receive more than one diagnosis because there are some things that tend to have secondary diagnoses or put a person more at risk for having or developing other things.

When you are a parent, receiving a diagnosis for your child can bring about a variety of different emotions, everything from relief to devastation. When that same child receives another diagnosis, the same emotions can occur or be even more intense.

When Your Child Receives Another New DiagnosisImage Copyright: olinkau / 123RF Stock Photo

I know that there are those (who are not the parents of special needs children) who may assume that each diagnosis becomes easier as we somehow get used to or are more prepared for, hearing those words again. I cannot speak for all parents, but I know for myself, it actually gets harder with each new diagnosis.

There are several reasons for this. I sometimes feel that my child has so many other obstacles to overcome that one more doesn’t seem like it’s fair (I know, as I tell my kids, fair is an “f” word and shouldn’t be used – but as a mom watching my child who struggles so much already and knowing there are further obstacles ahead, the word escapes my mouth). I also worry about another new thing for us to learn about and about the additional appointments and specialists to get to know and how all of that will impact not only the child affected, but the other kids in our family. And let’s face it, there’s only one of me and I’m already stretched pretty thin, to I also think about myself and my time and how it will affect me.

We are a special needs family. We have seven children and five of them have special needs. Of the special needs in our home, these are what is represented:

  • Aspergers
  • RAD
  • FASD
  • PTSD
  • SPD
  • sensory issues
  • cognitive delays
  • developmental delays
  • speech delays
  • ADD/ADHD
  • anxiety disorder
  • subtractive bilingualism
  • progressive hearing loss

For some of our kids, a new diagnosis on top of the one or several they already had wasn’t a big surprise. FASD increases the chances of both ADD/ADHD and SPD and it is not at all uncommon for those with Aspergers to have SPD as well. Time spent in orphanages also increases the risk of SPD, so it honestly came as no real surprise that we had so many kids with sensory needs.

When our daughter Miss Optimism was diagnosed with SPD, I hadn’t even heard of it. It was before sensory issues were being discussed in mainstream parenting and I was new to all of it. Last week I wrote about how her diagnosis helped us to unravel the mystery of why she wanted to wear tight fitting clothing. It helped us unravel several other mysteries as well such as why she picked holes in her brightly painted walls or spun herself in circles constantly. By the time we received the SPD diagnosis for many of them, I was already well versed in sensory lingo and felt fairly confident that I could help them to meet their sensory needs.

This year, we have received 3 new diagnoses for 2 of our kids and even though you might think that by now, I’m old hat at this and should be less affected, I was fairly devastated. As I’m unfortunately a bit of an expert at this, here is my advice for parents who receive a new diagnosis for their child:

Take time to grieve.

Tell others around you what you need and how they can help.

Take care of yourself.

Remember that your child is the same child they were before there was another label put on them.

When you are ready, begin to build yourself a support network within the new community. Join a support group if possible for parents who have children with that diagnosis. If you can’t find one locally, you will be able to find one online and those can be a wealth of information.

When you are ready, arm yourself with information so that you can advocate for your child and help them to reach their fullest possible potential.

You may feel that you have already grieved and then encounter a circumstance that requires you to grieve all over again. That’s ok and normal.

Coping with another diagnosis for your child takes time to adjust to. Eventually, you will live in that “new normal” and the pain that you are feeling right now will not be as acute, but when you first hear those words, even if they are words you were expecting and had thought you had prepared yourself for, it can feel like the bottom has come out from under you.

Hang in there…I can tell you from experience that the world will right itself again. You will get to a place where you discover that this diagnosis comes with some blessings as well as challenges. Your family will get through this. You will get through this.

For today, just breathe.

Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope for parents.

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Filed Under: Sensory, Special Needs Parenting

Sensory Stations

By Sharla Kostelyk

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Setting up sensory stations is a way to allow children to easily meet their sensory needs whether it’s in your home or the classroom. We homeschool and for a few years now have used a few unofficial sensory stations in our classroom but I have recently begun to create official sensory stations and a chart to let the kids know what the stations are.

Sensory Station Ideas for the home or classroom

Disclaimer: I am in no way responsible for any injury that occurs in the course of any of these suggestions. I am simply a parent of many children who have sensory processing disorder and am sharing our experiences with you.

There are many ways that you can provide kids access to these stations. You can have them rotate through the stations in between other activities, have them rotate through the stations at a set time, or you can simply provide the stations and let the kids know what they are and that they are welcome to use them when they need to.

You can choose to have the station set up like a circuit and have them numbered or ordered in a very organized way or you can have them be more of a fluid concept. I would suggest that if you have children with autism or children who just need more structure, you have some type of chart or way for them to keep track of the stations if you don’t have them laid out in a circuit.

When the weather is nice, we are able to incorporate some outdoor stations into our rotation which makes things even easier and often the fresh air and change of pace help the kids almost as much as the actual activity.

Our current sensory stations are:

-the trampoline – They can choose just to jump or can play some trampoline games.

5 Trampoline Games (plus 5 bonus activities)

-sensory bin – I make a new sensory bin every week and the kids love playing in them. If you are looking for ideas, I have dozens of examples of our sensory bins in the sensory bins category (click that link to take you there) or if you are new to making sensory bins, you may want to consider purchasing my Sensory Bins ebook.

Sensory Bins ebook

-playdough – Right now, the playdough station we have set up is what we call Stuck in the Mud, but the playdough station changes throughout the year such as having a Gingerbread playdough station set up in December. Your playdough station doesn’t need to be elaborate. Include playdough and playdough mats or some simple toys or kitchen gadgets.

Stuck in the Mud Playdough Game

-merry-go-round – I know that most people don’t have a merry-go-round set up in their backyard, but we happen to. My dad found one at an auction a few years ago and had it put in for us. The reason I share this station though is because it is great for meeting vestibular sensory needs. There are other things you could do to create a vestibular (think spinning or balance and movement) sensory station. A climbing wall, jungle gym for monkey bars or swinging, indoor swing, a tunnel for crawling through, or a spinning chair would all be excellent vestibular sensory stations.

backyard merry go round

-busy bags – We use busy bags for a variety of things but many of the ones that I make are very sensory rich, so they work well as a sensory station.

7 Busy Bags with Paint Chips

–anti-anxiety kit – This includes sensory balls, lavender playdough, a kaleidoscope, mini massager, and more.

Create an Anti-Anxiety Kit for Your Child including free printable relaxation prompts

-sponges and water – This is an example of a one time activity that the kids enjoyed so much, I turned it into a regular sensory station.

Simple Summer Sensory Activity

-auditory station – We always have this station set up in our classroom. It consists of a pair of headphones and a CD player. I put out different audio books and music each week.

auditory station

-bean bag chair – We have a large bean bag chair set up in our homeschool classroom and the kids love it for downtime. They can go there to read, snuggle with me, or just to relax.

bean bag chair

We do have some other stations such as a bin full of instruments, a playground, sandbox, and tunnel that I sometimes throw into the mix. Other times, I create an entirely new sensory activity that is really popular with the kids so I turn it into a sensory station.

Sensory Station Ideas:

–water or sand table

–water wall

–sensory bins

-tunnel

–climbing wall

-ball pit (this can be made easily by filling a kiddie pool with balls or pieces of cut up pool noodles)

-jungle gym

-swing (indoor or outdoor)

-spinning chair

–mats for summersaults, rolling, wrestling, flips

–shaving cream painting, fingerpainting, condensed milk painting, freezie painting, ice painting, puffy paint, face paint

-crab walk, crawl

-frog jump, bunny hop, jumping jacks

–light table

-jello, goop, gak, silly putty, slime (those links will take you to recipes to make your own)

-sensory tot trays

-heavy work like carrying books, a laundry basket push, pulling a wagon filled with rocks, carrying pails of water

-hanging area such as a chin up bar or monkey bars

-large hopping ball or exercise ball

-couch cushions or blankets for rolling up in or sandwiching between

-body socks or body tubes

-ice activities like this one or this one

-square or circle made with masking tape on the floor for jumping on one foot or doing lazy 8s

-drums, shakers, or other instruments

-instruments for creating a marching parade

-dancing station with music and a large area to move in

-pouring and scooping

-pots and pans and spoons (for stirring or banging)

-bean bag chair

-rocking chair

-bike riding

-bubble wrap

-salt tray

–texture cards

-scent bottles

-auditory station (headphones and CD player for music or audio books)

–sound therapy machine

-bin with soapy water for washing play dishes (or real dishes), cars or toys

-dress up station

-cooking station for older kids, particularly recipes that create dough that requires kneading or a lot of mixing

The great thing about being able to create your own sensory stations is that you can customize them to meet the sensory needs of your kids or students. You can also change them to fit weather or seasonal needs. Changing them from time to time also helps keep children interested and engaged. What sensory stations have you tried out?

Join me for a free 5 part email series Sensory Solutions and Activities and get your Sensory System Behaviours Easy Reference Cards.

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Filed Under: Sensory, Simple Sensory Solutions, Special Needs Parenting

Speech Therapy in Your Own Home

By Sharla Kostelyk

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Disclaimer: We received 3 free sessions in order to complete this review and I was compensated for my time, however the experiences and opinions are honest and all my own. I was not required to post a positive review. (In fact, I was such a fan, we chose to pay for additional sessions for another one of our daughters!) For more information, please see my disclosure policy. 

It was truly a privilege to be able to try out this service and to now be able to tell you about it. As a Special Needs mom, I sometimes feel like my life is just made up of appointments. Being able to access quality online speech therapy at home was such a relief. It eliminated some of my appointments and some of my stress. We were actually so impressed by this service that when the complimentary sessions for Dancing Queen that were provided in order for me to write this review were over, we chose to pay for sessions for Granola Girl!

How You Can Access Speech Therapy at Home

How online speech therapy works:

The first step in accessing this private speech therapy is to visit the webpage that profiles their speech therapists. The profiles offer both professional and personal information about the available therapists which allows you to find someone that you think would be a really good fit for you and for your family.

Once you have chosen your therapist, you arrange a time for an initial consultation that works for your schedule. At the consultation, you discuss with your therapist what would work best for you and/or your child and make a plan to move forward.

You then choose a private speech therapy package of either 5, 10 or 20 hours and pay for your sessions. Your sessions will then be arranged through e-mail at a time that works well for you and you begin.

You need access to a computer with a microphone and speakers. All the sessions take place online using GoTo Webinar, a very user friendly program.

What I love about Hello Foundation’s service:

They offer a free initial consultation.

This is a great way to see if this type of service is right for your family and to gauge how many sessions you will need.

You are in your own home.

There are so many benefits to this:

  • You don’t need to arrange for child care for your other kids.
  • You don’t have to drive anywhere. This saves time and gas money.
  • Your child feels comfortable because they are in a place that they feel safe and are used to.
  • If you have a laptop, you can have the session in whatever room you want to so you can minimize distractions and choose a room that your child is very familiar with.
  • You can be in your pyjamas. Your child can be in their pyjamas.
  • You can do other things while your child is having their session (during one session, I actually was doing Dancing Queen’s hair while she was doing her speech therapy!)
  • It is ideal for homeschoolers as it doesn’t interrupt the homeschool schedule.

The sessions start and end on time.

So often in taking the kids to appointments, we find ourselves sitting in waiting rooms, well, waiting. It is frustrating and a huge waste of time. It is also hard to plan around appointments when you don’t know how long they will actually be. My experience with Hello Foundation was that the speech therapy sessions began exactly on time and ended when they were scheduled to. This allowed me to make other plans on those days and not be wasting any time in a waiting room.

Anyone can access this speech therapy. 

Sometimes parents in smaller communities are limited in being able to access services such as speech therapy. Even larger communities can have long wait lists or conditions that prevent parents from being able to access the service but online speech therapy is something that all families can use.

Our experience with speech therapy online:

I looked through Hello Foundation’s online therapist profiles and chose Sasha. I had read on her profile that some of her experience included working at a VA hospital with veterans. As soon as I read that, I knew that she would be uniquely qualified to work with Dancing Queen, as she would likely have an understanding of PTSD and its effects on the brain. It turned out that she was a wealth of information and provided me with suggestions for not only improving Dancing Queen’s speech, but her overall cognitive function.

Sasha was easy to work with, encouraging, positive, and very good with Dancing Queen. I found Sasha to be very professional but also approachable, gentle and kind.

We decided to target two issues in regards to Dancing Queen’s speech. The first was that she has always said “way” instead of “or”. We aren’t sure why this is, but we assume it is because English is not her first language and it is just a word that she mis-learned and then got into the habit of saying it that way. We have tried to correct it ourselves without much success. She showed some progress with it in working with Sasha and continues to improve.

The other issue we were focusing on was her not properly pronouncing her “th” sound. Sasha worked with her on this and as well provided me with games and activities that we could do ourselves to strengthen this skill.

She was even able to bring up different visuals on the screen to use with Dancing Queen during online sessions.

online speech therapy with visual

With having the ability to both see and hear each other, Sasha was able to demonstrate things such as sticking the tongue out when making the “th” sound as well as being able to give Dancing Queen reminders when she saw that she was forgetting to stick her tongue out. (We don’t normally encouraging the sticking out of tongues, but of course make an exception when it comes to learning to make the “th” sound!!!)

speech therapy for the "th" soundSasha sent follow up e-mails with further information for what we had discussed during sessions and with worksheet and games for me to do with Dancing Queen to continue the speech therapy on our own.

Sasha and I also worked together without Dancing Queen in the room in order for her to offer me specific suggestions on reducing her cognitive load and therefore enable her to learn more effectively in general. One of the big struggles with Dancing Queen’s PTSD (post traumatic stress disorder) is the effect it has on her cognitive functioning. It causes lack of attention and focus and a lack of retention, so homeschooling has been quite a challenge. Sasha offered many suggestions to help me lessen the work that Dancing Queen has to do with her brain in other areas to hopefully open her up to learning.

I have only just begun to implement these suggestions, so can’t yet report the outcome, but I found the suggestions to be excellent. They lined up with what I had previously researched about PTSD and its effects on the brain. The suggestions were concrete and customized for Dancing Queen and for our family situation. I appreciated that Sasha took the time to research ideas for us in between sessions and that she gave me the ability to move forward on my own.

Dancing Queen looked forward to her sessions and loved working with Sasha!

Additional information:

If you are a busy mom of Special Needs kids, I really encourage you to contact Hello Foundation and find out how they might be able to help you.

In addition to speech therapy, Hello Foundation also offers social skills training, which can be of particular benefit to children on the autism spectrum.

You can follow Hello Foundation on Facebook or on their blog.

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Filed Under: Special Needs Parenting

Money Saving Sensory Solutions

By Sharla Kostelyk

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Equipping your home to adapt to a child with sensory needs can be expensive. I was astonished to find just how expensive some of the sensory tools were. Five of our kids have Sensory Processing Disorder so the search for sensory solutions that wouldn’t break the bank is a journey I have been on for many years now. I have managed to come up with a lot of low cost options that work just as well as the items that are sold by specialty stores for a fraction of the cost.

Money Saving Sensory Solutions

Here are some of the items we have adapted or found a lower cost solution for:

Weighted vests, capes or clothing

Many children have a much easier time regulating themselves when they are wearing weighted vests or clothing. Sewing your own may save money. I don’t know how to sew though.

If you are like me and don’t sew, you can buy a vest with pockets such as a fly fishing vest and add weights to the pockets.

Weighted neck rolls can be as effective for some children as weighted capes are and are usually much less money.

For some of my kids, wearing very tight fitting outfits underneath their clothing is as effective, if not more effective than weighted clothing. We accomplish this by buying gymnastics suits that are a few sizes too small and having them wear them under their regular clothes. In this way, they still get the feeling of the extra pressure. Gymnastics leotards that go down to the mid-thigh (biketards) and/or have sleeves are what we’ve found to work the best.

You may be able to find second hand gymnastics outfits online, in consignment stores or from friends whose kids have outgrown them. As with all things sensory, it’s best if you can have your child try it on before buying. Avoid things with itchy fabrics like glitter or sequins.

Fidget toys and chewelry

Actual sensory fidget toys are ridiculously expensive! This may sound like the wackiest thing ever, but pet toys can make excellent fidget toys. They are often rich in texture and durability and they are a fraction of the cost of fidget toys!
Obviously, I am recommending that you buy new toys from the pet store or online for your child, not have them play with your dog’s toy!

We make our own sensory balls for pennies. I have full instructions for making your own here.

Create Your Own Sensory Balls (for pennies each)Knobby balls are fairly inexpensive and can be used as fidget toys or for sensory activities.

Other low cost things that work for fidget toys include playdough (this recipe for homemade Lavender Scented Playdough is calming as well), silly putty (you can make your own easily), pencil toppers or pencil grips, sponges (from the Dollar store!), ribbons, stones, beads (also from the Dollar store), rubber band balls, and baby toys.

Lanyards can double as chewlery and are much less expensive. My kids also like using those coil keychains that are often given away by companies at Trade Fairs as bracelets that they can chew on.

One of my readers suggested buying teething beads in the baby section and stringing them onto a pretty ribbon to make a necklace (homemade chewlry).

Seat aids

Some of our kids have Movin’ Sit cushions but they are a bit pricey. Another solution is to buy therabands (exercise bands) and put them around the legs of the chair or desk. An even cheaper solution is to do this with scraps of stretchy fabric or old nylons. This will provide your child with sensory feedback when they swing their legs.

Bean bag chairs can be another solution for sitting but they also tend to be a bit pricey.

Textured disks like the kind you can buy at Ikea make good seat disks.

You can fill a large sock with rice to make a weighted lap snake. Those microwaveable heat packs also make good weighted lap pads. These can help with staying seated and feeling more regulated while seated.

Weighted Blankets

Weighted blankets are expensive. There’s really no way to sugar coat it. You can make your own if you know how to sew or you can make a very heavy quilt or blanket. My aunt made some heavy blankets for our kids using old jeans. The denim is very heavy (and free if you collect ripped jeans from people you know).

If you don’t know how to sew (and don’t have an aunt who will make you blankets out of denim!), you can also try buying heavy down comforters when they go on sale.

If you do decide to buy a weighted blanket, be sure to let your child try it out before you spend the money on it as some kids don’t like them. Only two of our kids with Sensory Processing Disorder like them but two ones that do, love them! I was able to purchase our weighted blankets from Innovaid and were allowed to try them first to ensure that the kids would like them.

There is also an excellent tutorial on how to make your own stretchy sensory sheet.

Larger sensory items

You can save so much money by making your own things from items you can buy at hardware stores, fabric stores and Dollar stores. Examples include such things as making your own hammock, platform swing, tire swing, rock climbing wall, ball pit (you can also make a simpler one using a blow up pool or playpen and balls or cut up pool noodles), parachute, and lycra swings. (Click on each of the words to be taken to a tutorial for how to make these yourself.) You can make a crash pad by filling a duvet cover with foam pieces.

There are some things that are almost essential to have when you have a child with sensory needs but that just are expensive. These include such things as trampolines or mini trampolines and the Hop Bouncer. For items such as these, my best suggestion is to check Kijiji, Craigslist, eBay, Freecycle, the local paper, swap and buy and sell groups online, and garage sales. This should make the prices much more affordable and enable you to save for them and pay cash instead of going into debt to buy new ones.

Other sensory solutions

You can make your own sensory tunnel or tube (often called a Sensory Sock) using stretchy fabric for a fraction of the cost of buying it.

Use old couch cushions for compression sandwiches.

Create your own sensory bins, sensory boards and sensory bottles.

Ikea has some great sensory solutions that are quite inexpensive such as a swing and rings that can be hung indoors, their egg swivel chair, tunnels and small tents, a great hanging chair that swings as well as surrounds them like a small hammock (it’s called the EKORRE), and items such as textured cushions, and soft lights.

For the anxiety often associated with SPD or ASD, I highly recommend my anti-anxiety kit for kids. It works so well with our kids and can be customized to what works with your own child. You can make yours very inexpensively.

Create an Anti-Anxiety Kit for Your Child including free printable relaxation prompts

Instead of buying expensive noise blocking headphones, try inexpensive ear plugs, cotton or ear muffs.

Drums can be a good outlet for kids with sensory needs but can be made using household items like ice cream pails, pots and pans, and empty coffee tins.

You may also be interested in reading:

Surviving Public Bathrooms with a Child with Sensory Issues

Must Haves for Kids with Sensory Needs

Resources to Teach Kids About Emotions and How to Manage Them

What money saving sensory solutions have you found?

Join me for a free 5 part email series, Little Hearts, Big Worries offering resources and hope for parents.

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